The Japanese Registry, JMDP, has created a website where patients can thank their donors. Patients who would like to thank their donors are encouraged to fill an online form and to share their “thankyoudonor”
Transplant gives normal life to child with rare immune disorder Newborn twins A.J. and Emma Loscheider had only been home for a few days when mom Christena noticed something was wrong with A.J. He was rushed to the hospital, where doctors worked for five months to diagnose his condition – Immune dysregulation, Polyendocrinopathy, Enteropathy, X-linked (IPEX) syndrome. This rare genetic condition, with only 150 known cases worldwide, results in multiple autoimmune disorders. A.J.’s best chance of a cure was through a bone marrow transplant to replace his immune system. Family members were disappointed when none of them were a…
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